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Rock Bottom

Received my blood counts today and I have hit rock bottom, White blood counts are are 0.03 and Neutrophils are at 0.00. Which means I literally have no immune system. For me I take this as good news as it means things can only get better. Don’t forget we are targeting the 0.5 Neutrophils count before the docs will even consider releasing me. Platlets are also low and so far the docs have given me 2 platelets transfusions. First one went fine but for some reason i came out with a rash after last night’s. They once again gave me …

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Day 6 – post transplant

sorry for the silence the last few days….since we have received some beratings from family and friends So we thought we had better put some news up for everyone! We were pre- warned about 2 major side effects – mucousitus ( ulcers in the mouth & throat) and diahorrea.  David, always thinking that he is invincible, thought he had dodged these, but unfortunately these have snuck up on him over the last few days, so he has not been feeling in top form. The past few days have followed the same basic routine, toilet, vitals check, ,toilet,antibiotics, blood test, vital …

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Blood Counts

I wrote a few days ago about the blood counts that I would be monitoring and I have created a page where you can see the blood counts for yourselves. Blood Counts This is a static page so will always be available, unlike a blog post which moves down as new posts are created. You will find the page on the top right of the website next to the “About and History”, on a mobile device it will be under the menu button. Today’s counts show that I’m still in the decline and haven’t yet hit the bottom (0.0)

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My brother my superhero

I am up with David for this weekend while Megs take a well deserved break with the kids. Dave talked of the bubble…well I was not really prepared for how isolated he is. Basically he is spending most of his day totally alone with just the odd person popping in to do medical stuff. If possible they just talk to him through the door so as not to have to wash,scrub and grown up and redo to see the next patient. When his visitors arrive in the afternoon you can see the relief on his face as there is someone …

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We have a target..

So I’ve pushed Liezel, my ward doc for some answers. I know that I’m required to be in isolation, for what we’ve been told is an average of 2-3 weeks post re-infusion. But I wanted a target and something that I could track how close or far from it I was. Anyway the magic number is 0.5 and it’s the Neutrophils count (ie my fighter cells ). I was warned that that is not the only consideration, platelets have to be above 20, I have to have a good haemaglobin level and be healthy (not on antibiotics etc.). Everyday 4am …

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The infusion….

Sorry for those who don’t like the gory details, but here they are anyway….actually it wasn’t too bad! The infusion process was super organised and efficient, amazing nursing staff facilitated the whole thing. David started the day fine, but started to feel very apprehensive as preparations started. First his room was prepared which involved bringing in of oxygen equipment and heart measure equipment, all precautionary but doesn’t help the nerves.  David was then administered with a triple cocktail of anti-nausea drugs, David has had all these drugs before during chemo, but never at the same time….. Next he was put …

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Day 0 – transfusion day

It is here ….. Transfusion day has arrived. All is looking good , David is ready & waiting for his stem cells to be infused into his system.  He is being doped up with LOTS of meds that will knock him out for most of the day. Aside from some nerves, he is all good !    I think his transplant pressie might also be the cause of that grin though ….   

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It’s all Green

Krytomite for Batman has a name and it’s Cyclophosphamide . Quick calculation I have been through a total  39 Days of chemo since 2013 (that is administrative days, not effect days) and I have always said that I have been very very lucky with my chemo and have not suffered terribly from  what you would call the “expected” side affects. I’ve always told people its like having a hangover, but one that gets repeated. Put that down to modern pre-meds, fitness or whatever. All I can say I was lucky…. On Tuesday I started my final 7 days and on …

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Facebook Post from Lauren

A great uplifting Facebook post that I received from Lauren,  on a day a really needed a pick up. BTW Lauren’s mom Blyth and I started our first chemos together in September 2013, blithe is currently all clear. “Hey Dave just checking in to say greetings in the isolation ward! Hope your spirits are as high as your blogs show. I’ve just read a catchup (I must admit I was a bit behind) and I’m sure it’s a whole lot harder than your and Meg’s upbeat posts describe. I must say having watched my mom go through the chemo it’s …

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