Friday the 13th……

So we had a plan, 6 months post transplant I would have a PET scan to detect if there was any sign reoccurance, Doc made me suffer for an extra month so made my PET scan appointment for 16th May, I then tried to make my appointment with leon to get the results for the following day, but shocker Leon would be away on conference for a week so I would have to wait the whole week for the results…… EEEK I couldn’t do that…. So the only option available was to bring the PET scan forward to the 12th …

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Been a while

Sorry it’s been a while since I last posted, but I felt I needed a break from all things Cancer for a while. Anyway looking back on my posts, last time I posted I was still in Jhb. At end of November I was given the clearance to return to  Durban. Back in Durban I have been trying to be good, with much to do for work and around the house, and the kids on holiday, I’ve been itching to get going. In fact the worst problem is that whilst doing nothing I feel great, only when I start chasing …

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Quick Check In

A few people have been asking me for news, the problem is I don’t have much. I’m still at the flat in Bryanston with my folks looking after me. Being a month since my transplant I am allowed to venture out a little bit. I have also moved to the next diet, there is not much change except we can start to eat out, but do need to be very cautious on where and what I eat. As far as side effects, mostly all have gone, and those that remain are definitely manageable. The more activities we do the more I’m …

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Discharged Again

If you read Megan’s last post you know that I was admitted on Sunday 1 November back into ward 20, based purely on what the doc saw, we didn’t even have blood tests. Sunday night wasn’t a great one for me and I think I had Megan’s stomach bug. But I was in the right place at the right time,  a few different IV’s were hung and by morning I was feeling much better. With my blood results normal the  the doc started me on a 5 day course of IV antibiotics, this meant I had to spend another 5 …

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Freedom… Part2

Yesterday was a very emotional day for me, and as you all know I’m not an emotional guy, even my dad commented “David you don’t put much emotion into what you write” Isn’t that the pot calling the kettle black? When I was discharged Megs asked me how I felt, I answered hot, we had both forgotten that I’d been in the state of the art temperature controlled environment for 3 weeks, I did not know what it was to be hot or cold any more. What was quite ironic is that Jhb/Pretoria had been going through a heat wave, and …

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Freedom…. Part 1

Why Part 1?? I’m feeling very emotional today and there is  much I want to say, but it is late and what I want to say will need careful consideration to make sure the right words make it from brain, through my fingers to the keyboard. Straight to the point I’m not writing this post  from Room9, Ward 20 of Pretoria East hospital. Yesterday I wrote that I had achieved the requirements in terms of  Blood results to be discharged. I also stated that I doubted that would be discharged that day, but I was given hope by the doctors …

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Major Air Punch…

Doctors always told me my bloods will start to increase on day 9 or 10 post the transplant True to form they started to increase on day9. Day 10 also saw a sizable jump and today, day 11, when I picked up my results I was expected good news. One of the very few things I can remember from boiology is that cells divide ie 1 becomes 2, 2 becomes 4 etc, thus  I was expecting my counts to double. Thus my theory was that my white whites would go from 0.20 on the 24th October to approximately 0.40, and …

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Rock Bottom

Received my blood counts today and I have hit rock bottom, White blood counts are are 0.03 and Neutrophils are at 0.00. Which means I literally have no immune system. For me I take this as good news as it means things can only get better. Don’t forget we are targeting the 0.5 Neutrophils count before the docs will even consider releasing me. Platlets are also low and so far the docs have given me 2 platelets transfusions. First one went fine but for some reason i came out with a rash after last night’s. They once again gave me …

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Blood Counts

I wrote a few days ago about the blood counts that I would be monitoring and I have created a page where you can see the blood counts for yourselves. Blood Counts This is a static page so will always be available, unlike a blog post which moves down as new posts are created. You will find the page on the top right of the website next to the “About and History”, on a mobile device it will be under the menu button. Today’s counts show that I’m still in the decline and haven’t yet hit the bottom (0.0)

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We have a target..

So I’ve pushed Liezel, my ward doc for some answers. I know that I’m required to be in isolation, for what we’ve been told is an average of 2-3 weeks post re-infusion. But I wanted a target and something that I could track how close or far from it I was. Anyway the magic number is 0.5 and it’s the Neutrophils count (ie my fighter cells ). I was warned that that is not the only consideration, platelets have to be above 20, I have to have a good haemaglobin level and be healthy (not on antibiotics etc.). Everyday 4am …

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